Neurodiversity

The Behaviour Speak Podcast
Episode 48: Group Homes for People With Intellectual Disabilities with Christine Bigby, MSW, Ph.D. 
In this episode, Ben chats with Dr. Chris Bigby who has been conducting research in group home settings for more than 30 years. In this conversation Dr. Bigby shares her work in identifying the key indicators of good group homes (i.e., where residents live their best lives and staff, enjoy their work) and how to best reach those outcomes. 
 
Continuing Education Units (CEUs): https://cbiconsultants.com/shop
BACB: 1.5 Learning 
IBAO: 1.5 Learning
QABA: 1.5 General 
PLEASE NOTE THE THIRD SECRET WORD IS A REPEAT OF THE SECOND SECRET WORD AND SHOULD BE ENTERED AS SUCH WHEN PURCHASING CEUS FOR THIS EPISODE. 
 
General Information:
Dr. Chris Bigby: https://scholars.latrobe.edu.au/cbigby
Active Support Resources: https://www.activesupportresource.net.au
Julie Beadle-Brown: https://www.kent.ac.uk/social-policy-sociology-social-research/people/1418/beadle-brown-julie
 
Show Notes:
Pat Mirenda and Toileting: https://www.actcommunity.ca/education/videos/toilet-training-for-everyone-revised-and-expanded 
Dissemination Station on Instagram: https://www.instagram.com/disseminationstation
Elimination Communication: https://godiaperfree.com/elimination-communication
 
The Behaviour Speak Podcast Episodes Referenced:
Episode 25: https://www.behaviourspeak.com/e/episode-25havingsexseeing-a-concert-going-to-thepubliving-with-myfriendsproper-outcomesof-positive-behaviour-supportwithdrdarren-bowringphd
Episode 46: https://www.behaviourspeak.com/e/episode-46-using-relational-frame-theory-to-tackle-stigma-toward-persons-with-disabilities-with-dr-rocco-catrone
 
Articles Referenced:
Bigby, C., & Beadle-Brown, J. (2016, July). Dimensions of culture in underperforming and better group homes for people with severe intellectual disabilities. Journal of Intellectual Disability Research, 60, No. 7-8, pp. 637-637. 
Bigby, C.,  Bould, E., Bennett, P., & Howell, T. (2020) 'More people talk to you when you have a dog' - Dogs as catalysts for social inclusion of people with intellectual disabilities. La Trobe. Journal contribution. https://doi.org/10.26181/5fa36f64e1c9c
Bigby, C. & Anderson S. (2021). Creating opportunities for convivial encounters for people with intellectual disabilities: “It looks like an accident”. Journal of Intellectual & Developmental Disability, 46(1), 45-57. DOI: 10.3109/13668250.2020.1812178
Bould, E., Bigby, C., Iacono, T., & Beadle-Brown, J. (2019, July). Identifying factors that predict and sustain good active support in group homes for people with intellectual disabilities using multi-level modelling. Journal of Intellectual Disability Research, 63(7), 710-710.
Humphreys, L., Bigby, C., & Iacono, T. (2020). Dimensions of group home culture as predictors of quality of life outcomes. Journal of Applied Research in Intellectual Disabilities, 33, 1284–1295. https://doi.org/10.1111/jar.12748
Humphreys, L., Bigby, C., Iacono, T., & Bould, E. (2021). Patterns of group home culture in organizations supporting people with intellectual disabilities: A cross-sectional study. Journal of Intellectual & Developmental Disability. DOI: https://doi.org/10.3109/13668250.2021.1954482
Quilliam, C., Bigby, C., & Douglas, J. (2015). Paperwork in group homes for people with intellectual disability. Journal of Intellectual & Developmental Disability, 40(3), 286-296. https://DOI:10.3109/13668250.2015.1034255

In this episode, Ben chats with Rocco Catrone, Ph.D., BCBA-D about his work in applying relational frame theory (RFT) to stigma towards individuals with disabilities. The conversation starts by looking at some of the societal phenomena that contribute to stigma followed by an RFT analysis of stigma and a discussion of a basic research experiment toward reducing perceptions of stigma.
 
Continuing Education Units (CEUs): https://cbiconsultants.com/shop
BACB: 1.5 Learning
IBAO: 1.5 Cultural
QABA: 1.5 DEI
 
Trigger Warning:
In this episode, we discuss several topics related to stigma that may be triggering to some. The following are approximate times when these topics are discussed:
 17:40: Othering
 25:50: Simulation Exercises
 31:00: Inspiration Porn
 37:00: Assisted Suicide/Abortion
 47:20: Discussion Ends
 
General Information:
Dr. Rocco Catrone: https://www.thechicagoschool.edu/faculty-finder/byname/rocco_catrone
 
Show Notes:
Giant Steps of Ilinois: https://www.mygiantsteps.org 
Stella Young - Ted Talk: https://www.youtube.com/watch?v=8K9Gg164Bsw 
Love On The Spectrum: https://www.netflix.com/ca/title/81265493 
Inclusion BC: https://inclusionbc.org 
 
The Behaviour Speak Podcast Episodes Referenced:
Episode 21: https://www.behaviourspeak.com/e/episode-21-the-effects-of-empathy-training-on-racial-bias-and-other-research-from-dr-victoria-suarez-phd-bcba-d 
Episode 26: https://www.behaviourspeak.com/e/episode-26-smashing-the-patriarchy-a-conversation-about-sexism-and-privilege-in-behaviour-analysis-with-dr-natalia-baires-phd-bcba-d
Episode 28: https://www.behaviourspeak.com/e/episode-28-including-autistic-people-in-every-aspect-of-autism-research-with-dr-m-ariel-cascio-phd 
Episode 35: https://www.behaviourspeak.com/e/episode-35-staff-training-and-supervision-with-dr-dennis-reid-phd-bcba-d
Episode 38: https://www.behaviourspeak.com/e/episode-38-what-we-can-do-about-stigma-and-racism-using-behaviour-science-with-dr-marija-colic-phd-bcba-d
 
Articles Referenced:
Catrone, R.G., & Koch, D.S. (2021). A behavioral approach to increasing perceptions of capability toward people with disabilities. Behavior and Social Issues, 30, 39–57. https://doi.org/10.1007/s42822-021-00059-x
Čolić, M. (2021). Clarification of stigma concepts in research with families of individuals with neurodevelopmental disabilities. International Journal of Developmental Disabilities. https://doi.org/10.1080/20473869.2021.1989978 
Dixon, M.R., Rehfeldt, R.A., Zlomke, K.R., et al. (2006). Exploring the development and dismantling of equivalence classes involving terrorist stimuli. Psychological Record, 56, 83–103. https://doi.org/10.1007/BF03395539
McGill, P., Bradshaw, J., Smyth, G., Hurman, M. & Roy, A. (2020). "Capable environments", Tizard Learning Disability Review, 25(3), 109–116. https://doi.org/10.1108/TLDR-05-2020-0007
 

In this episode, we sit down with Tiffany Hammond, best known on social media as Fidgets and Fries. Tiffany is a Black Autistic mother of two Black Autistic boys.  Across these intersecting identities, Tiffany tirelessly advocates for systemic change.  
 
Continuing Education Units (CEUs): https://cbiconsultants.com/shop
BACB: 1.5 Ethics
IBAO: 1.5 Cultural/Ethics
QABA: 1.5 DEI
 
General Information:
Tiffany Hammond: https://lnk.bio/fidgets.and.fries
 

Ben has a wonderful conversation with Dr. Elizabeth Laugeson about all aspects of the social skills program, PEERS, from neurodiversity-affirming practice, cultural considerations, positive outcomes, and long-term follow-up.
 
Continuing Education Units (CEUs): https://cbiconsultants.com/shop
BACB: 1.5 Learning
IBAO: 1.5 Learning
QABA: 1.5 General
 
Show Notes:
PEERS: https://www.semel.ucla.edu/peers 
PEERS Research: https://www.semel.ucla.edu/peers/research
Dan Geschwin: https://geschwindlab.dgsom.ucla.edu/pages 

In this episode Ben chats with Marija Čolić, Ph.D., BCBA, about her research in Serbia and the US on stigma for Autistic folks and other disabilities. They then discuss her recent paper on Black caregivers perspectives on racism in autism services.
 
Continuing Education Units (CEUs): https://cbiconsultants.com/shop
BACB: 2.0 Ethics
IBAO: 2.0 Cultural/Ethics
QABA: 2.0 DEI/Ethics
 
General Information:
Dr. Marija Čolić: https://coe.hawaii.edu/sped/directory/colic
 
Show Notes:
Anderson Center for Autism International Program: https://www.andersoncenterforautism.org/international
 
The Behaviour Speak Podcast Episodes Referenced:
Episode 9: https://www.behaviourspeak.com/e/episode-9-behaviour-analysis-in-senegal-with-adair-cardon-ms-bcba 
Episode 21: https://www.behaviourspeak.com/e/episode-21-the-effects-of-empathy-training-on-racial-bias-and-other-research-from-dr-victoria-suarez-phd-bcba-d 
Episode 26: https://www.behaviourspeak.com/e/episode-26-smashing-the-patriarchy-a-conversation-about-sexism-and-privilege-in-behaviour-analysis-with-dr-natalia-baires-phd-bcba-d 
 
Articles Referenced:
Čolić, M., Araiba, S., Lovelace, T. S., et al. (2021). Black caregivers’ perspectives on racism in ASD services: Toward culturally responsive ABA practice. Behavior Analysis in Practice. https://doi.org/10.1007/s40617-021-00577-5 
Čolić, M. (2021). Clarification of stigma concepts in research with families of individuals with neurodevelopmental disabilities. International Journal of Developmental Disabilities. https://doi.org/10.1080/20473869.2021.1989978 
Čolić, M., Dababnah, S., & Milačić-Vidojević, I. (2021). A model of internalized stigma in parents of individuals with disabilities. International Journal of Developmental Disabilities. DOI: 10.1080/20473869.2021.1924032 
Čolić, M., & Milačić-Vidojević, I. (2021). Perceived stigma among Serbian parents of children with autism spectrum disorder and children with physical disabilities: Validation of a new instrument. Journal of Autism and Developmental Disorders, 51, 501–513. https://doi.org/10.1007/s10803-020-04559-4 
Čolić, M. & Milačić-Vidojević, I. (2020). Do Serbian parents of children with autism spectrum disorder experience a greater degree of stigma than parents of children with physical disabilities. https://www.researchgate.net/profile/Marija-Colic/publication/345716613_Do_Serbian_parents_of_children_with_autism_spectrum_disorder_experience_a_greater_degree_of_stigma_than_parents_of_children_with_physical_disabilities/links/5faba2ba299bf18c5b64cb38/Do-Serbian-parents-of-children-with-autism-spectrum-disorder-experience-a-greater-degree-of-stigma-than-parents-of-children-with-physical-disabilities.pdf 
Čolić, M., Dababnah, S., Garbarino, N., & Betz, G. (2022). Parental experiences raising children with autism spectrum disorder in Eastern Europe: A scoping review. International Journal of Developmental Disabilities, 68(1), 1–13. https://doi.org/10.1080/20473869.2019.1688931
Green, S. E. (2003). “What do you mean ‘what's wrong with her?’”: Stigma and the lives of families of children with disabilities. Social Science & Medicine, 57(8), 1361–1374.https://doi.org/10.1016/S0277-9536(02)00511-7 
Weinstein, J. H., Wilson, K. G., Drake, C. E., et al. (2008). A relational frame theory contribution to social categorization. Behavior and Social Issues, 17, 40–65. https://doi.org/10.5210/bsi.v17i1.406 
 
Podcasts to Check Out:
Beautiful Humans: https://anchor.fm/beautiful-humans 
Shades of ABA: https://anchor.fm/shadesofaba 

In this episode, Ben chats with Dr. Grant Bruno. Grant is Nehiyaw (Plains Cree) from Maskwacis, Alberta, a Ph.D. student in Medical Science in the Department of Pediatrics at the University of Alberta, and a father to autistic children. His Ph.D. research explores autism in First Nations communities through a Nehiyaw lens.
In Cree, the word used to describe autism is pîtoteyihtam — he/she/they think differently.
 
Continuing Education Units (CEUs): https://cbiconsultants.com/shop
BACB: 1.5 Ethics
IBAO: 1.5 Cultural/Ethics 
QABA: 1.5 Ethics
 
Show Notes:
Hobbema Residential School: https://collections.irshdc.ubc.ca/index.php/Detail/entities/1080 
University of Alberta - Native Studies Program: https://www.ualberta.ca/native-studies/index.html 
Lonnie Zwiagenbaum: https://www.ualberta.ca/medicine/about/people/details.html?n=lonnie-zwaigenbaum;    https://sites.google.com/a/ualberta.ca/autismresearchcentre/our-team/lonnie-zwaigenbaum 
David Nicholas: https://socialwork.ucalgary.ca/david-nicholas
Nehiyaw Language: https://cfrac.com/projects-initiatives/nehiyaw-language-lessons    
Tla’amin First Nation: https://www.tlaaminnation.com  
Israel Powell: https://powellriver.ca/pages/backgroundinfo   

Ben chats with Amelia Bowler about her work supporting kids with ADHD and/or ODD.  They also reflect on personal experiences and have a discussion on neurodiversity and what it means to identify as neurodiverse. 
 
 
Continuing Education Units (CEUs): https://cbiconsultants.com/shop
BACB: 1.5 Learning
IBAO: 1.5 Learning
QABA: 1.5 General
 
Show Notes:
Bob and Doug MacKenzie and RUSH: https://www.youtube.com/watch?v=8Jm4LoOaAWI
The Teacher’s Guide to Oppositional Defiance Disorder by Amelia Bowler: https://www.amazon.com/Teachers-Guide-Oppositional-Defiant-Disorder/dp/1787759334
The Parent’s Guide to Oppositional Defiance Disorder by Amelia Bowler: https://www.amazon.ca/Parents-Guide-Oppositional-Defiant-Disorder/dp/1787752380  
Brock University - Master of Applied Disability Studies: https://brocku.ca/programs/graduate/mads
Neurotribes by Steve Silberman: https://www.penguinrandomhouse.com/books/310415/neurotribes-by-steve-silberman-foreword-by-oliver-sacks
Executive Functions - What they are, how they work, and why they evolved by Russell A. Barkley: https://www.amazon.ca/Executive-Functions-What-They-Evolved/dp/146250535X
TAG Teach with Surgeons: https://pubmed.ncbi.nlm.nih.gov/26369658
Particle Man - They Might Be Giants: https://www.youtube.com/watch?v=mLjRouIKYsU
 

This episode features a fascinating, thought-provoking conversation with Dr. M. Ariel Cascio.  Dr. Cascio conducts research in the areas of person-oriented ethics and inclusion in autism research.
 
Continuing Education Units (CEUs): https://cbiconsultants.com/shop
BACB: 1.5 Ethics
IBAO: 1.5 Ethics
QABA: 1.5 Ethics
 
Show Notes:
Cascio, M. A., Weiss, J. A., & Racine, E. (2020). Person-oriented ethics for autism research: Creating best practices through engagement with autism and autistic communities. Autism, 24(7), 1676-1690. https://doi.org/10.1177/1362361320918763 
M. Ariel Cascio, Florian Grond, Rossio Motta-Ochoa, Tamar Tembeck, Dan Ten Veen, Stefanie Blain-Moraes. (2020). Working together: Ethnographic observations on participatory design involving adults with autism. Human Organization, 79(1), 1-12. https://doi.org/10.17730/0018-7259.79.1.1 
M. Ariel Cascio, Jonathan A. Weiss & Eric Racine. (2021). Empowerment in decision-making for autistic people in research. Disability & Society, 36(1), 100-144. https://doi.org/10.1080/09687599.2020.1712189 
Cascio, M. A., Weiss, J. A. & Racine, E. (2021). Making autism research inclusive by attending to intersectionality: A review of the research ethics literature. Review Journal of Autism and Developmental Disorders, 8, 22-36. https://doi.org/10.1007/s40489-020-00204-z  

This episode includes two conversations with Ontario Autism Coalition directors, Michau Van Speyk and Philip Lerner. Michau and Phil share their perspectives on advocating for better services for autistic people in Ontario as well as some of their personal experiences from an autistic lens.
 
Continuing Education Units (CEUs): https://cbiconsultants.com/shop
BACB: 1.0 Learning
IBAO: 1.0 Learning
QABA: 1.0 General
 
Show Notes:
Specialisterne: https://ca.specialisterne.com    
Phillip Lerner's LinkedIn Page: https://www.linkedin.com/in/philip-lerner    
Ontario Autism Coalition: https://ontarioautismcoalition.com       
ONTABA: https://ontaba.org    
 

In this episode, Ben chats with Dr. Amy Tanner about assessment and intervention for infants and toddlers who are showing signs of autism but are too young for a formal autism diagnosis.
 
Continuing Education Units (CEUs): https://cbiconsultants.com/shop
BACB: 1.5 Learning
IBAO: 1.5 Learning
QABA: 1.5 General
 
Contact
Amy Tanner: https://www.dramytanner.com   
Links
Amy Tanner Keynote: https://www.youtube.com/watch?v=sn5Zyb_Ji10 
Queen’s University Centre for Behaviour Analysis: https://www.qub.ac.uk/research-centres/CentreforBehaviourAnalysis
Karola Dillenburger: https://pure.qub.ac.uk/en/persons/karola-dillenburger   
Katerina Dounavi: https://pure.qub.ac.uk/en/persons/katerina-dounavi   
Infant Start: https://pubmed.ncbi.nlm.nih.gov/25212413; https://youtu.be/ygRI4MJQY8Q 
Infant Toddler Checklist: https://brookespublishing.com/product/csbs-dp-itc   
The SPARC: https://www.dramytanner.com/about   
Lonnie Zwaigenbaum: https://www.ualberta.ca/medicine/about/people/details.html?n=lonnie-zwaigenbaum   
 
Articles Referenced:
Tanner, A., & Dounavi, K. (2019). Maximizing the potential for infants at-risk for autism spectrum disorder through a parent-mediated verbal behaviour intervention. European Journal of Behaviour Analysis, 21(2), 271-291. https://doi.org/10.1080/15021149.2020.1731259 
Amy Weatherby and SORF: 
Dow, D., Guthrie, W., Stronach, S. T., & Wetherby, A. M. (2017). Psychometric analysis of the Systematic Observation of Red Flags for autism spectrum disorder in toddlers. Autism: The International Journal of Research and Practice, 21(3), 301–309. https://doi.org/10.1177/1362361316636760 
Autism Observation Infant Scale:
Bryson, S. E., Zwaigenbaum, L., McDermott, C., Rombough, V., & Brian, J. (2008). The Autism Observation Scale for Infants: Scale development and reliability data. Journal of Autism and Developmental Disorders, 38(4), 731-738. https://doi.org/10.1007/s10803-007-0440-y 
Systematic Literature Review:
Tanner, A., & Dounavi, K. (2021). The emergence of autism symptoms prior to 18 months of age: A systematic literature review. Journal of Autism and Developmental Disorders, 51, 973-993. https://doi.org/10.1007/s10803-020-04618-w 
MacDonald, R., Parry-Cruwys, D., Dupere, S., & Ahearn, W. (2014). Assessing progress and outcome of early intensive behavioral intervention for toddlers with autism. Research in Developmental Disabilities, 35(12), 3632-3644. https://doi.org/10.1016/j.ridd.2014.08.036 
Relevant Behaviour Speak Podcast Epiosdes
Behavior Analysis and Fragile X Syndrome with Dr. Katerina Monlux
https://www.behaviourspeak.com/e/episode-137-fragile-x-syndrome-with-dr-katerina-monlux/
 

Ben chats with Alexia Stack, M.Ed, BCBA about all things trauma and autism including a thorough discussion of her 2019 article entitled “Autism Spectrum Disorder and the Experience of Traumatic Events: Review of the Current Literature to Inform Modifications to a Treatment Model for Children with Autism”.  They also talk about consent, assent, acceptance and commitment training and so much more!
 
Continuing Education Units (CEUs): https://cbiconsultants.com/shop
BACB: 1.5 Learning
IBAO: 1.5 Learning
QABA: 1.5 Trauma-Informed Care
 
Show Notes:
Stack, A., & Lucyshyn, J. (2019). Autism Spectrum Disorder and the Experience of Traumatic Events: Review of the Current Literature to Inform Modifications to a Treatment Model for Children with Autism. Journal of autism and developmental disorders, 49(4), 1613–1625. https://doi.org/10.1007/s10803-018-3854-9
Forthcoming chapter in The Handbook of Autism Spectrum Disorder and the Law: https://law.stanford.edu/publications/clinicians-as-advocacy-allies-for-people-with-autism-spectrum-disorder
Kim Bartholomew Attachment Research: http://www.sfu.ca/psychology/people/bartholomew/papers/adultattachment.html
National Institute for the Clinical Application of Behavioral Medicine: https://www.nicabm.com
Praxis Continuing Education and Training: https://www.praxiscet.com
Cusp Emergence (Camille Kolu, Ph.D, BCBA-D): https://cuspemergence.com
Robin Walser, Ph D.: http://www.tlconsultationservices.com/Podcasts-and-Interviews.html
The Association for Contextual Behavior Science: https://contextualscience.org
 
Facebook Groups:
Trauma (ACES) From An Applied Behavior Analysis Perspective: https://www.facebook.com/groups/2190700404281176
Trauma-Informed Schools: https://www.facebook.com/groups/542002662929768
Listen.Learn.Lead: https://www.facebook.com/groups/dobettermovement
ACT for ABA Practitioners: https://www.facebook.com/groups/1429925357078709
Contextual Behavior Science: https://www.facebook.com/groups/139577856152643
 
Recommended References:
Brenner, J., Pan, Z., Mazefsky, C., Smith, K. A., & Gabriels, R. (2017). Behavioral symptoms of reported abuse in children and adolescents with autism spectrum disorder in inpatient settings. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-017-3183-4.
Ciarrochi J., Hayes, L. & Bailey, A. (2012). Get out of your mind and into your life for teens: A guide to living an extraordinary life. 
Cohen, J. A., Mannarino, A., Kliethermes, M. & Murray, L. K. (2012). Trauma-focused CBT for youth with complex trauma. Child Abuse and Neglect, 36, 528-541.
Cohen, J. A., Mannarino, A. & Murray, L. K. (2011). Trauma-focused CBT for youth who experience ongoing traumas. Child Abuse and Neglect, 35, 637-646.
Dixon, M., & Paliliunas., D. AIM: A behavior analytic curriculum for social emotional development in children.
Felitti, V. J., Anda, R. F., Nordenberg, D., Williamson, D. F., Spitz, A. M., Edwards, V., Koss, M. P., & Marks, J. S. (1998). Relationship of childhood abuse and household dysfunction to many of the leading causes of death in adults: The adverse childhood experiences (ACE) study. American Journal of Preventive Medicine, 14(4), 245-256.
Hayes, S. (2005). Get out of your mind and into your life: The new acceptance and commitment therapy.
Hoover, D. W. (2015). The effects of psychological trauma on children with autism spectrum disorders: A research review. Review Journal of Autism and Developmental Disorders, 2, 287-299.
Kerns, C., Newschaffer, C., & Berkowitz, S., & Lee, B. K. (2017). Brief report: Examining the association of autism and adverse childhood experiences in the national survey of children’s health: The important role of income and co-occuring mental health conditions. Journal of Autism and Developmental Disorders, 47, 2275-2281.