Advocacy

In this episode, I chat with the late Dr. Lyz Hughes-Fong about all things cultural (competence, humility, sensitivity, awareness, and understanding). We discuss diversity trends in behavior analysis and suggestions for moving forward.  
It is with extreme sadness and sorrow that we share the passing of our very dear friend and colleague, Dr. Elizabeth “Lyz” Hughes Fong on February 29, 2024. Dr. Hughes Fong’s pivotal work in cultural competency and humility sparked a movement that has forever shaped the field of behavior analysis toward increased diversity, equity, and inclusion.
 
Lyz was an active member of St. John Chrysostom Church and The Springhaven Club in Wallingford.
 
Lyz was a shining light. Her work and its impact will forever be part of our history and growth. But most importantly, her kind, thoughtful, selfless, and warm spirit will forever be part of our hearts. She had a way of fostering genuine human connection; she brought people together and forged long-lasting friendships that will endure in her absence.
 
Lyz is survived by a husband, parents, sister, and a daughter. She was deeply dedicated to her child's happiness, education, and well-being. In lieu of flowers, donations to support the higher education of Dr. Fong's daughter are appreciated.
 
On behalf of her husband and family, thank you! Please consider donating to the Go Fund Me link below. 
 
https://www.gofundme.com/f/dr-elizabeth-hughes-fong
Continuing Education Units (CEUs): https://cbiconsultants.com/shop
BACB: 1.5 Learning 
IBAO: 1.5 Cultural
QABA: 1.5 DEI
 
The Behaviour Speak Podcast Episodes Referenced:
Episode 37: https://www.behaviourspeak.com/e/episode-37-the-realities-of-autism-in-first-nations-communities-in-canada-with-grant-bruno-phd-candidate
Episode 42: https://www.behaviourspeak.com/e/episode-42-a-deep-dive-into-the-inequities-professorship-and-authorship-in-behaviour-analysis-with-dr-anita-li-phd-bcba-d
Episode 43: https://www.behaviourspeak.com/e/episode-42-family-centred-positive-behaviour-support-with-dr-joseph-lucyshyn-phd-bcba-d-part-1
 
Other Podcast Episodes Referenced:
https://www.abainsidetrack.com/get-ceus/episode-104-culturally-competent-assessment 
Articles Referenced:
Fong, E. H., & Tanaka, S. (2013). Multicultural alliance of behavior analysis standards for cultural competence in behavior analysis. International Journal of Behavioral Consultation and Therapy, 8(2), 17–19. https://doi.org/10.1037/h0100970
Fong, E. H., Catagnus, R. M., Brodhead, M. T., et al. (2016). Developing the cultural awareness skills of behavior analysts. Behavior Analysis Practice, 9, 84–94. https://doi.org/10.1007/s40617-016-0111-6
Fong, E. H., Ficklin, S., & Lee, H. Y. (2017). Increasing cultural understanding and diversity in applied behavior analysis. Behavior Analysis: Research and Practice, 17(2), 103–113.

The Behaviour Speak Podcast
Episode 48: Group Homes for People With Intellectual Disabilities with Christine Bigby, MSW, Ph.D. 
In this episode, Ben chats with Dr. Chris Bigby who has been conducting research in group home settings for more than 30 years. In this conversation Dr. Bigby shares her work in identifying the key indicators of good group homes (i.e., where residents live their best lives and staff, enjoy their work) and how to best reach those outcomes. 
 
Continuing Education Units (CEUs): https://cbiconsultants.com/shop
BACB: 1.5 Learning 
IBAO: 1.5 Learning
QABA: 1.5 General 
PLEASE NOTE THE THIRD SECRET WORD IS A REPEAT OF THE SECOND SECRET WORD AND SHOULD BE ENTERED AS SUCH WHEN PURCHASING CEUS FOR THIS EPISODE. 
 
General Information:
Dr. Chris Bigby: https://scholars.latrobe.edu.au/cbigby
Active Support Resources: https://www.activesupportresource.net.au
Julie Beadle-Brown: https://www.kent.ac.uk/social-policy-sociology-social-research/people/1418/beadle-brown-julie
 
Show Notes:
Pat Mirenda and Toileting: https://www.actcommunity.ca/education/videos/toilet-training-for-everyone-revised-and-expanded 
Dissemination Station on Instagram: https://www.instagram.com/disseminationstation
Elimination Communication: https://godiaperfree.com/elimination-communication
 
The Behaviour Speak Podcast Episodes Referenced:
Episode 25: https://www.behaviourspeak.com/e/episode-25havingsexseeing-a-concert-going-to-thepubliving-with-myfriendsproper-outcomesof-positive-behaviour-supportwithdrdarren-bowringphd
Episode 46: https://www.behaviourspeak.com/e/episode-46-using-relational-frame-theory-to-tackle-stigma-toward-persons-with-disabilities-with-dr-rocco-catrone
 
Articles Referenced:
Bigby, C., & Beadle-Brown, J. (2016, July). Dimensions of culture in underperforming and better group homes for people with severe intellectual disabilities. Journal of Intellectual Disability Research, 60, No. 7-8, pp. 637-637. 
Bigby, C.,  Bould, E., Bennett, P., & Howell, T. (2020) 'More people talk to you when you have a dog' - Dogs as catalysts for social inclusion of people with intellectual disabilities. La Trobe. Journal contribution. https://doi.org/10.26181/5fa36f64e1c9c
Bigby, C. & Anderson S. (2021). Creating opportunities for convivial encounters for people with intellectual disabilities: “It looks like an accident”. Journal of Intellectual & Developmental Disability, 46(1), 45-57. DOI: 10.3109/13668250.2020.1812178
Bould, E., Bigby, C., Iacono, T., & Beadle-Brown, J. (2019, July). Identifying factors that predict and sustain good active support in group homes for people with intellectual disabilities using multi-level modelling. Journal of Intellectual Disability Research, 63(7), 710-710.
Humphreys, L., Bigby, C., & Iacono, T. (2020). Dimensions of group home culture as predictors of quality of life outcomes. Journal of Applied Research in Intellectual Disabilities, 33, 1284–1295. https://doi.org/10.1111/jar.12748
Humphreys, L., Bigby, C., Iacono, T., & Bould, E. (2021). Patterns of group home culture in organizations supporting people with intellectual disabilities: A cross-sectional study. Journal of Intellectual & Developmental Disability. DOI: https://doi.org/10.3109/13668250.2021.1954482
Quilliam, C., Bigby, C., & Douglas, J. (2015). Paperwork in group homes for people with intellectual disability. Journal of Intellectual & Developmental Disability, 40(3), 286-296. https://DOI:10.3109/13668250.2015.1034255

In this episode, Ben chats with Rocco Catrone, Ph.D., BCBA-D about his work in applying relational frame theory (RFT) to stigma towards individuals with disabilities. The conversation starts by looking at some of the societal phenomena that contribute to stigma followed by an RFT analysis of stigma and a discussion of a basic research experiment toward reducing perceptions of stigma.
 
Continuing Education Units (CEUs): https://cbiconsultants.com/shop
BACB: 1.5 Learning
IBAO: 1.5 Cultural
QABA: 1.5 DEI
 
Trigger Warning:
In this episode, we discuss several topics related to stigma that may be triggering to some. The following are approximate times when these topics are discussed:
 17:40: Othering
 25:50: Simulation Exercises
 31:00: Inspiration Porn
 37:00: Assisted Suicide/Abortion
 47:20: Discussion Ends
 
General Information:
Dr. Rocco Catrone: https://www.thechicagoschool.edu/faculty-finder/byname/rocco_catrone
 
Show Notes:
Giant Steps of Ilinois: https://www.mygiantsteps.org 
Stella Young - Ted Talk: https://www.youtube.com/watch?v=8K9Gg164Bsw 
Love On The Spectrum: https://www.netflix.com/ca/title/81265493 
Inclusion BC: https://inclusionbc.org 
 
The Behaviour Speak Podcast Episodes Referenced:
Episode 21: https://www.behaviourspeak.com/e/episode-21-the-effects-of-empathy-training-on-racial-bias-and-other-research-from-dr-victoria-suarez-phd-bcba-d 
Episode 26: https://www.behaviourspeak.com/e/episode-26-smashing-the-patriarchy-a-conversation-about-sexism-and-privilege-in-behaviour-analysis-with-dr-natalia-baires-phd-bcba-d
Episode 28: https://www.behaviourspeak.com/e/episode-28-including-autistic-people-in-every-aspect-of-autism-research-with-dr-m-ariel-cascio-phd 
Episode 35: https://www.behaviourspeak.com/e/episode-35-staff-training-and-supervision-with-dr-dennis-reid-phd-bcba-d
Episode 38: https://www.behaviourspeak.com/e/episode-38-what-we-can-do-about-stigma-and-racism-using-behaviour-science-with-dr-marija-colic-phd-bcba-d
 
Articles Referenced:
Catrone, R.G., & Koch, D.S. (2021). A behavioral approach to increasing perceptions of capability toward people with disabilities. Behavior and Social Issues, 30, 39–57. https://doi.org/10.1007/s42822-021-00059-x
Čolić, M. (2021). Clarification of stigma concepts in research with families of individuals with neurodevelopmental disabilities. International Journal of Developmental Disabilities. https://doi.org/10.1080/20473869.2021.1989978 
Dixon, M.R., Rehfeldt, R.A., Zlomke, K.R., et al. (2006). Exploring the development and dismantling of equivalence classes involving terrorist stimuli. Psychological Record, 56, 83–103. https://doi.org/10.1007/BF03395539
McGill, P., Bradshaw, J., Smyth, G., Hurman, M. & Roy, A. (2020). "Capable environments", Tizard Learning Disability Review, 25(3), 109–116. https://doi.org/10.1108/TLDR-05-2020-0007
 

In this episode, we sit down with Tiffany Hammond, best known on social media as Fidgets and Fries. Tiffany is a Black Autistic mother of two Black Autistic boys.  Across these intersecting identities, Tiffany tirelessly advocates for systemic change.  
 
Continuing Education Units (CEUs): https://cbiconsultants.com/shop
BACB: 1.5 Learning
IBAO: 1.5 Cultural
QABA: 1.5 DEI
 
General Information:
Tiffany Hammond: https://lnk.bio/fidgets.and.fries
 

In this episode Ben chats with Marija Čolić, Ph.D., BCBA, about her research in Serbia and the US on stigma for Autistic folks and other disabilities. They then discuss her recent paper on Black caregivers perspectives on racism in autism services.
 
Continuing Education Units (CEUs): https://cbiconsultants.com/shop
BACB: 2.0 Learning
IBAO: 2.0 Cultural
QABA: 2.0 DEI
 
General Information:
Dr. Marija Čolić: https://coe.hawaii.edu/sped/directory/colic
 
Show Notes:
Anderson Center for Autism International Program: https://www.andersoncenterforautism.org/international
 
The Behaviour Speak Podcast Episodes Referenced:
Episode 9: https://www.behaviourspeak.com/e/episode-9-behaviour-analysis-in-senegal-with-adair-cardon-ms-bcba 
Episode 21: https://www.behaviourspeak.com/e/episode-21-the-effects-of-empathy-training-on-racial-bias-and-other-research-from-dr-victoria-suarez-phd-bcba-d 
Episode 26: https://www.behaviourspeak.com/e/episode-26-smashing-the-patriarchy-a-conversation-about-sexism-and-privilege-in-behaviour-analysis-with-dr-natalia-baires-phd-bcba-d 
 
Articles Referenced:
Čolić, M., Araiba, S., Lovelace, T. S., et al. (2021). Black caregivers’ perspectives on racism in ASD services: Toward culturally responsive ABA practice. Behavior Analysis in Practice. https://doi.org/10.1007/s40617-021-00577-5 
Čolić, M. (2021). Clarification of stigma concepts in research with families of individuals with neurodevelopmental disabilities. International Journal of Developmental Disabilities. https://doi.org/10.1080/20473869.2021.1989978 
Čolić, M., Dababnah, S., & Milačić-Vidojević, I. (2021). A model of internalized stigma in parents of individuals with disabilities. International Journal of Developmental Disabilities. DOI: 10.1080/20473869.2021.1924032 
Čolić, M., & Milačić-Vidojević, I. (2021). Perceived stigma among Serbian parents of children with autism spectrum disorder and children with physical disabilities: Validation of a new instrument. Journal of Autism and Developmental Disorders, 51, 501–513. https://doi.org/10.1007/s10803-020-04559-4 
Čolić, M. & Milačić-Vidojević, I. (2020). Do Serbian parents of children with autism spectrum disorder experience a greater degree of stigma than parents of children with physical disabilities. https://www.researchgate.net/profile/Marija-Colic/publication/345716613_Do_Serbian_parents_of_children_with_autism_spectrum_disorder_experience_a_greater_degree_of_stigma_than_parents_of_children_with_physical_disabilities/links/5faba2ba299bf18c5b64cb38/Do-Serbian-parents-of-children-with-autism-spectrum-disorder-experience-a-greater-degree-of-stigma-than-parents-of-children-with-physical-disabilities.pdf 
Čolić, M., Dababnah, S., Garbarino, N., & Betz, G. (2022). Parental experiences raising children with autism spectrum disorder in Eastern Europe: A scoping review. International Journal of Developmental Disabilities, 68(1), 1–13. https://doi.org/10.1080/20473869.2019.1688931
Green, S. E. (2003). “What do you mean ‘what's wrong with her?’”: Stigma and the lives of families of children with disabilities. Social Science & Medicine, 57(8), 1361–1374.https://doi.org/10.1016/S0277-9536(02)00511-7 
Weinstein, J. H., Wilson, K. G., Drake, C. E., et al. (2008). A relational frame theory contribution to social categorization. Behavior and Social Issues, 17, 40–65. https://doi.org/10.5210/bsi.v17i1.406 
 
Podcasts to Check Out:
Beautiful Humans: https://anchor.fm/beautiful-humans 
Shades of ABA: https://anchor.fm/shadesofaba 

In this episode, Ben chats with Dr. Darren Bowring, a researcher at the University of Warwick in the UK.  Dr. Bowring’s research focuses on updating the causal model of behaviour, designing community-based PBS specialist teams and the overprescribing of medications to people with intellectual disabilities.
 
Continuing Education Units (CEUs): https://cbiconsultants.com/shop
BACB: 1.5 Learning
IBAO: 1.5 Learning
QABA: 1.5 General
 
Show Notes:
BILD Conference 2021: https://www.bild.org.uk/m-events/bild-international-positive-behaviour-support-conference-2021     
Stay Up Late: https://stayuplate.org   
STOMP: https://www.england.nhs.uk/publication/stomp-stopping-the-over-medication-of-people-with-a-learning-disability-autism-or-both 
 
References:
Baker, P., Stafford V., & Hardiman, R. A. (2019). Cross sectional study of trauma symptomatology among staff working with people with intellectual disabilities who present challenging behaviour. International Journal of Positive Behaviour Support, 9(1), 30-37.
Bigby, C. & Beadle-Brown, J. (2016). Culture in better group homes for people with intellectual disability at severe levels. Intellectual and Developmental Disabilities, 54(5), 316-331. doi: https://doi.org/10.1352/1934-9556-54.5.316 
Bowring, D. L., Totsika, V., Hastings, R. P. & Toogood, S. (2018). Toward data-based clinical decision making for adults with challenging behavior using the Behavior Problems Inventory-Short Form (BPI-S). Tizard Learning Disability Review, 23(2), 103-110. https://doi.org/10.1108/TLDR-06-2017-0025 
Deveau, R. & McGill, P. (2016). Practice leadership at the front line in supporting people with intellectual disabilities and challenging behaviour: A qualitative study of registered managers of community-based, staffed group homes. Journal of Applied Research in Intellectual Disabilities, 29, 266-277. https://doi.org/10.1111/jar.12178 
Gore, N. J., McGill, P., Toogood, S., Allen, D., Hughes, J. C., Baker, P., Hastings, R. P., Noone, S. J., & Denne, L. D. (2013). Definition and scope for positive behavioural support. International Journal of Positive Behavioural Support, 3(2), 14-23.
McGill, P., Bradshaw, J., Smyth, G., Hurman, M. & Roy, A. (2020). Capable environments. Tizard Learning Disability Review, 25(3), 109-116. https://doi.org/10.1108/TLDR-05-2020-0007 
Sheehan, R., Hassiotis, A., Walters, K., Osborn, D., Strydom, A., Horsfall, L., et al. (2015). Mental illness, challenging behaviour, and psychotropic drug prescribing in people with intellectual disability: UK population based cohort study. BMJ, 35, 4326. https://doi.org/10.1136/bmj.h4326 
Verdugo, M. A., Schalock, R. L., Keith, K. D. & Stancliffe, R. J. (2005). Quality of life and its measurement: Important principles and guidelines. Journal of Intellectual Disability Research, 49, 707-717. https://doi.org/10.1111/j.1365-2788.2005.00739.x 

This episode includes two conversations with Ontario Autism Coalition directors, Michau Van Speyk and Philip Lerner. Michau and Phil share their perspectives on advocating for better services for autistic people in Ontario as well as some of their personal experiences from an autistic lens.
 
Continuing Education Units (CEUs): https://cbiconsultants.com/shop
BACB: 1.0 Learning
IBAO: 1.0 Learning
QABA: 1.0 General
 
Show Notes:
Specialisterne: https://ca.specialisterne.com    
Phillip Lerner's LinkedIn Page: https://www.linkedin.com/in/philip-lerner    
Ontario Autism Coalition: https://ontarioautismcoalition.com       
ONTABA: https://ontaba.org